we were at a critical point at work when all of this went down
I work for the IS department of our hospital system and had just spent the last several months with the rest of our team training all the hospital staff on the new computer system
we implemented EPIC at midnight on August 1st
I had was in the middle of my second shift when I started to have very regular contractions
so I walked some more and took a few extra flights of stairs
I had proclaimed months earlier that I would have the first EPIC baby
Huck was born on August 2nd
I don’t remember what time he was born
Huck was not the first EPIC baby
the first baby was delivered due to a trauma, I’m glad that wasn’t Huck
my co-workers were in hospital supporting the new system
they labored with me
they saved me from having a c-section
I had a student nurse stop in
she had never inserted a foley
my old nursing instructor assisted her
they did a fabulous job
I assisted my real nurses with EPIC as I labored
Huck tumbled out into the world screaming and peeing
the world stopped and so did his breathing as they set him on my chest
the NICU team rushed in
as they attempted to resuscitate him they wanted his name
I yelled out “Huck”
we hadn’t officially decided on Huck yet, discussions were supposed to take place after he was born
oops
I apologized to Scott for making an executive decision but made no attempt to undo his sudden naming
Huck was rushed off to the NICU
I was alone
very alone
I called my co-workers
they were AMAZING
some had NICU connections
very strong NICU connections
I didn’t even know how much he weighed
I didn’t even know if he was alive
soon I received a visit and a scrap of yellow paper
the top of it read “Huck the Super Star”
it continued 6 pounds 15 ounces
19 3/4 long
most importantly, he was alive
I still have that paper
she explained that Huck worked so hard fighting to breath that he popped a hole in his left lung
I cried
I wouldn’t see him again for an hour
the nurse told me I could go see him when I could stand on my currently numb legs
I lied
she tested me
I failed miserably
they got me a stretcher
I wouldn’t hold him again for nine days
he went on and off of a machine called bubble cpap that assisted him in breathing but could potentially pop another hole in his delicate lungs
I developed a love hate relationship with bubble cpap
ironically several years before this series of events Finn lay in the NICU on bubble cpap
Finn is the bubble cpap model baby in an instruction manual made by the NICU years ago
sadly I was already familiar with the bubble cpap
a tube was inserted through his nose into his stomach
two lines were inserted into his umbilical stump to access a vein and an artery
leads monitored his heart rate
a little gold heart thermostat measured his temperature
he had IV in his left hand
so did I
on day three I stood at his bedside and knew something was wrong
his respiration rate increased and he started retracting
he was fighting to breath harder than ever and he was quickly deteriorating in front of me
a stat chest x-ray was ordered
the neonatologist apologized to me
Huck had popped a hole in his right lung just now in front of me
he needed to perform an emergent procedure to save my little Huckleberry
I remained strong until I found the arms of my co-worker around me
I broke down as they prepped Huck for more necessary pain and procedures
I ignored texts from home because texting back meant it was real and admitting Huck was in trouble
I still cry when I type this out
I was a zombie
my amazing co-workers fed me, pumped me, sat with me, hugged me, cried with me, carried my breast milk to the NICU and so much more
they were my rocks
Huck received two dinosaur hearts
I wore one in my bra every day
when I would come and visit, I would remove the one from his face and put it in my bra and recover his face with the scent loaded dino heart from my bra
we still struggled to keep him calm sometimes
Huck would receive pain medication when we could not soothe him
that made me cry
he bombed his first hearing test
I pictured myself signing I love you to a toddler
I secretly tested him and felt bad when it startled him
but I still smiled
he passed his second hearing test with flying colors
I begged to take photos of him
I took one flash photo of him and I startled him and made him cry
it felt like the most selfish thing I had ever done
photography in a dark NICU without a flash is a learned art
taking photos with a dirty (medically speaking) camera is a bit tricky as well
the required 3 minute scrub in time gave me the cleanest hands I’ve ever had
I hung up pictures of the brothers he had never met in his isolette
he needed to know he had a team cheering for him
I changed his diaper for the first time on day four
I did a bad job even though I volunteered in the NICU for several years and have changed several thousand diapers
I was embarrassed
Huck screamed and it took 2 nurses and myself to calm him back down
my co-workers bought groceries for me
all things that could be prepared by a nine year old
Gavin received a card from a friend with money in it to take us all out to dinner
he took us to Outback
driving to the hospital became more routine than it has ever been
I parked in emergency parking on more than one occasion at the hospital
I didn’t feel guilty
I felt like a crappy mom every time I walked out of that hospital without him leaving him alone for the nurses to take care of
I felt like a crappy mom every time I walked out of my house without the four big boys leaving them home without me
he kept his feet crossed the entire time
he didn’t wear clothes
he loves to be swaddled, loves his pacifier and loves his dino eye cover and would probably still love Fentanyl if he was allowed…
all funny little comforts learned in the NICU
my co-workers would text me pictures of Huck in the middle of the night
new co-workers were introduced to Huck every shift
he was famous
my co-workers bought me lunch every day
I love hospital cafeteria food
my daily chats with them were amazingly therapeutic even though they were about nothing
the NICU is supposed to be quiet, sometimes it wasn’t
I pumped every two hours around the clock
the boys all got a lesson in breast feeding
my milk came in
the boys spilled my first four ounces of milk
the puppy licked it up off the floor
I cried (over spilled milk)
I brought in little bottles of frozen milk to the NICU every day
even though he wasn’t able to drink it
I felt like the queen of the NICU or the guest of honor
I was greeted like a celebrity every time I entered
The staff was incredible
The took amazing care of Huck and agreed with me every time a proclaimed that he was the cutest baby ever
school started
after several days Huck could recognize the soft click of my camera and learned to pose
he had the same hair as the neonatologist
they very slowly began to feed him through his NG tube
he got 9 ml every 4 hours
I pumped 240 ml every 2 hours
calculating that made me leak
the dog is obsessed with breast milk
it’s gross, I’ll spare you the details
I loved chatting with the NICU nurses
they all commented on the photos of Huck’s big brothers
his every breath and heartbeat were monitored
I tried not to watch the numbers on the screen
I tried not to watch the numbers on the screen of another baby as he repeatedly coded
he still breaths too fast
Huck was one of the biggest babies in the NICU
Huck was one of my smallest babies
on day eight Huck wore clothes for the first time
it was a brown bear sleeper, he liked it
a co-worker shielded Huck from view of the protective (but absolutely incredible) nurses for five seconds
just long enough that I could scoop him up and nuzzle him into my neck and smell his puffy hair and squeeze him without getting caught
we quickly tucked him back in and no one noticed
it was amazing
maybe even more amazing than the moment he was born
on day nine I held my Huckleberry for the first time
I cried
I didn’t wipe my tears because the sign says if you touch your face you have to scrub in again and the thought disturbing this incredible moment were too much
I didn’t make eye contact with the mom that was watching me
she wasn’t even supposed to touch her baby yet
I cried more for her
I wanted to talk to her and tell her I was sorry
sorry that I got my turn before she got hers
sorry that by the way it looked, she may not actually ever have a turn
I wanted to look at her but was afraid that with all my emotions and hormones I may not convey the right message to her
after ten roller coaster days, we finally came home
I try not to think of the other babies that didn’t get to go home yet
I pray for them and their mothers every night or sometimes when I nurse Huck
weeks later he still sleeps with his heart over his eyes
I haven’t washed them
Huck loves to nurse
nine days of not nursing only made him a better nurser
nine days of not being introduced to his brothers made his brothers very anxious
our homecoming was incredible
Huck was not the first EPIC baby born in the system
Huck was the first EPIC NICU discharge
his brothers love to hold him
Tommy holds him the most
the dog loves him the most
his chest tube dressings had to stay on for five days after discharge
they are off now
he cried while I peeled them off
i wanted to cry as I peeled them off
the dog ate one of them
he will forever have his scars as reminders
the doctor says Huck is thriving
we have made up for lost time
nursing and cuddling are at the top of my to do list every day (and night)
more pictures will come but that requires actually setting him down
something I am not prepared to do yet
he is crying now and wants to be nursed